Mission Statement

American Dystonia Society (ADS) is dedicated to advancing Dystonia research, promoting patient advocacy and increasing public awareness of this debilitating disease. Our top priority is to maximize delivery of donations to fund Dystonia Research in order to realize a cure and develop more effective diagnosis/medication/treatment protocols for Dystonia. ADS is dedicated to improving the quality of life for a person living with Dystonia.

Welcome to the American Dystonia Society
a Dystonia Foundation for the 21st century
and a member of The Dystonia Coalition

To kick off its national support initiative, American Dystonia Society will hold "Meet and Greet" teleconferences on Sunday March 14th at 4PM EDT and Saturday March 13th at 4PM EST. The founder will be available to discuss the upcoming support groups and answer questions and volunteer discussions. Some of the directors will participate in the teleconferences. The dial-in number is (605)477-2100 and the participant access code will be 421467# for both teleconferences. We hope you join us for this unprecedented effort to reach out with support to all Dystonia patients and their loved ones.

Click here for more info on ADS's Support Initiative
Por Espanol, Haz click Aqui
Click here or the "For Patients" link on the left for Support Group Info

American Dystonia Society wishes to express its gratitude to a fellow Dystonian Deb Friedson
who is responsible for our logo/image that captures the essence of who we are and our daily struggles. For more samples of her artwork, please visit elephantheart.net

ADS Logo Merchandise is now available at the Dystonia Photo Store
All net proceeds will be donated to ADS

We are pleased to announce the addition of 2 new members of the Board of Directors.
Denise Gaskell has joined us to coordinate Patient Support.
Dawn Brinkley has joined ADS to lead our Veterans with Dystonia Outreach.
Both Denise and Dawn are very compassionate people who also suffer from Dystonia
and will bolster our efforts to serve the entire Dystonia Community.


Please join us in our quest to accelerate Dystonia research and improve the quality of life for people with Dystonia. Our
primary goal is to deliver at least 80% of all donations
to Dystonia research. To achieve this, we will use the latest technologies including, but not limited to, the use of virtual office space, webinars, and on-line teleconferencing tools to avoid high overhead costs.

None of our directors receive any compensation in this all-volunteer foundation.

Please visit our site often as we grow and become more active.

2009 Year End Message from American Dystonia Society's Founder
CLICK HERE

We are looking for volunteers to represent ADS in every US State and the District of Columbia, please click on the volunteer e-mail below to contact us.